%0 Journal Article
%9 ACL : Articles dans des revues avec comité de lecture répertoriées par l'AERES
%A Gabarro, C.
%A Knobe, S.
%A Schultz, Emilien
%T Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?
%B Systèmes de soin, catégorisations et expériences :  quelle(s) spécificité(s) des cancers de l'enfant ?
%D 2021
%E Carof,  S.
%E Pombet, T.
%E Schultz, Emilien
%L fdi:010083406
%G FRE
%J Anthropologie et Santé
%@ 2111-5028
%K associations ; pediatric cancers ; mobilization ; parental identity ; bereaved parents ; France
%K FRANCE
%M ISI:000726114600011
%P 9749  [21 ]
%U https://www.documentation.ird.fr/hor/fdi:010083406
%> https://www.documentation.ird.fr/intranet/publi/2022-01/010083406.pdf
%V 23
%W Horizon (IRD)
%X This article starts from the observation of a higher involvement of associations in the field of pediatric oncology, which differs from adult oncology. Building on two surveys, concerning respectively adult and pediatric cancers, we connect this difference to the specificity of parents' associations. More precisely, we identify two particular forms of associations led by parents, less common among adult patients: on the one hand, associations attached to a hospital department, and on the other hand, associations "personalized" around the history of a family. It appears that if the experience of the disease constitutes a common motor for commitment among adult patients and parents of sick children, it is its influence on parental identity that accounts for the existence of these two forms of associations. By documenting associative commitment in the field of pediatric cancers, this article invites us to take a closer look at the consequences of the recomposition of parental identities in the associative dynamics related to the disease.
%$ 056